Friday, March 6, 2015

Champagne for my Campaign



 “Your MRI reports show no enhancing lesions. Cervical cord same with some improvement but essentially stable. In the brain old lesions are improving but some new lesions (not enhancing). Taken together this looks stable, it is too soon to know if Copaxone is working or failing. Usually working if no enhancement.”

 I was going to try and summarize how happy I was with a song, but unfortunately I am chained to my desk and I can’t video myself singing and dancing.

So I’ll settle for this blog post instead. 

This might not seem like a big deal but it’s a pretty big deal to me. I hate shots and needles and blood, and since getting diagnosed I’ve had to give myself daily injections of Copaxone every day. Sometimes the site of my injection swells up or it becomes itchy, and at times it’s extremely painful. I found that using a heating pad before I administer the shot helps, and then I use an ice pack when I’m done. I also found that not eating gluten or sugars helps me feel better. Go figure. Gluten is a monster. This sound crazy to me at the time, but I did say I would do anything to get better so I did, even if it meant cutting out my beloved friend Mac & Cheese and alcohol from my diet. 

Now here I am with good news.

Good news on a good week. 

This week I decided to walk MS. I thought that doing something to raise awareness and funds to a disease would help people. Thanks to people before me who walked, funds were raised and now the advances are amazing, people like me are getting positive feedback.
Bringing me to the point. Your donations make a difference.
Something else that makes a difference is laughing and having fun and celebrating life’s small victories. Friday, I salute you. And MS I give you the middle finger because I think I told you before I am not MS’n around.

Letter from the Editor:  Thanks to TK.  I know you want a blog post about you, but in the meantime settle for this. I know you’re already settling for so much like chicken, salad and vegetables when all you really want is a sub. My nightly injections would be nothing without my night nurse.

Xoxo
B

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