A lot has happened since my last blog post. For instance I got diagnosed with MS. That's right in case you've been living under a rock / care to ignore my posts on facebook and instagram. I was diagnosed with Multiple Sclerosis (MS) on August 24th 2014. After a while people stop asking how you are, stop really seeing how you're doing and don't bother to check in. Just like everything in life, things only last so long. It's not because people don't care, it's just everyone has their own crap. This crap, (MS) is mine, so here goes my story.
I've been familiar with this disease since I was in high school because my mom has it too. Lucky us! But really, you the reader are the lucky one. I am about to enlighten you all with my life. How it isto live with someone who has MS, and now how it is to live with MS.
"Well lets, start at the very beginning, a very good place to start" I went to bed one night in August and woke up in the morning and was completely nauseous I couldn't see well and didn't really know what was happening. After much debate whether I was crying for attention ( per TK) or I was hungover ( also TK) I lay on the bathroom floor and begged TK to take me to the ER, well aware that this visit would be longer than I anticipated.
Before I left for my long hot journey through the Callahan Tunnel, I changed out of my Guinness
t -shirt and into a Jimmy Fund shirt to seek immediate entrance because lets face it, I was hopefully that The Jimmy Fund shirt would move me along (especially at a hospital). And it worked.
I sat in the waiting room for 30 seconds and was immediately moved along. I sat in a wheelchair and got pushed around and told every Dr. I met how my mom had MS and I thought that's what I had. My hands had pins and needles in them and so did my feet and they were not going away. Before I knew it, I was awaiting an MRI, 2 hours later I was out and being moved up to the neurology floor. * This is where I will tell you about my high praise for MGH, and all the people I
know that work there or work in any hospital for that matter you are a gift from god.
THANK YOU
After arriving to my room, and getting "comfortable" TK left to make some calls. This is when the Dr, came in and told me I had Multiple Sclerosis, while I was ALONE. Lovely, that he waited until I was by myself, don't you think.* This actually wasn't so bad, as the last thing I needed was to comfort someone else
I ended up staying overnight at MGH for three nights. I had friends come by and help my look more like a pirate bringing me an eye patch and hat, braiding my hair, delivering Helluva Good and Cape Cod Potato Chips to remind me of college, and who could forget my 7 month pregnant MOH wheeling my mom up to see me. I saw a lot in those few days, I saw the beginning of my future and what good people had in them. Now 6 months later, here I am no eye patch and hopefully no new lesions on my brain.
I can't tell you in one blog post what Ive been doing for the past 6 months, what medicine I'm on, how sometimes I'm scared, how it is to be on the other side of the fence, or fearful I am that I will have another attack next August. I'll have to fill you all in one post at a time.
You cant have everything all at once right, I mean that wouldn't keep you interested
In the meantime you can click here
http://www.nationalmssociety.org/What-is-MS
and of course here http://www.nationalmssociety.org/Donate
Letter from the Editor: A very special thank you to all my friends and family who have made this part of my life story so special just by being a part of it. I would also like to say THANK YOU to Princess Jasmine. When we were young, you would come to my house every weekend, without fail every time you walked into my house my mom would tell you how nice you looked. Thank you for always telling me the nice things your mom says about me and for encouraging me to write about this. My hope is that someone affected by MS in any way, shape or form can find some peace through my words.
XOXO
B
No comments:
Post a Comment