Finding my way through life. Learning to how to live better, laugh more and love what I have. 30 year old wife and orphan living with MS.
Thursday, July 2, 2015
58 days and counting...
Friday, June 26, 2015
'Cause this fine old world it keeps spinnin' around
Sunday, April 12, 2015
Sweeeeet Emotion
Upon standing in line, someone saw my shirt "The Fightin Irish" and asked me who's Irish I was fighting and I said my own. The person behind me was stunned and I... PROUD, after a short discussion we parted way's and he told me "GOOD LUCK!"
When I was told that I had MS, I had a few thought's in mind and here are just a few...
1.Fight
2. Don't get down on yourself
3. Educate other's
4. Change people's perspective on MS
5. Make this disease invisible
To my family, friends who have turned into family, friends of friends, and of course those who I knew years ago and have not been in touch with for a long time but felt compassion to donate to my walk and my fight THANK YOU. I personally cannot begin to tell everyone who has donated how much it meant for me to have you contribute to something that will help me and many others in so many ways.
Thank you for helping me become a TOP 25 top fundraising team, for sharing my story, all the kind, inspiring words that have given me sunshine on a sometimes cloudy day. I am forever grateful for it all.
Sunday, March 29, 2015
Have your cake and eat it too
Sugar Cane, otherwise known as a great description of my past 12 months of being engaged
Sugar Cane is the real thing. Nothing compared to an artificial sweeter that has a possibility of causing neurological diseases. No, Pure sugar can you lift you up when you’re feeling down, and has the ability to make almost anything taste sweeter. Bottom line it’s real.
It’s been quite the year. We have written a few chapters, and sure there have been times when I wish I lived alone and didn’t have to answer to someone asking anout my latest Francesca’s purchase, or ask me why it was necessary that we have flower’s at our wedding, But at the end of the day I couldn’t seem to put the book down.
I knew that when I met my “match” three years ago he would need to be someone who was the complete opposite of me. Someone who could calm me down, lift me up (not physically) someone who could learn to love a crazy Irish girl. But, I also wanted someone who would allow me to still be all of those things.
In time I have learned that a quiet voice is better to communicate with, following a budget leads to less fights, and cleaning up the bathroom is like winning the super bowl.
Thank you for being the sugar to my salty life. For me, this spoonful of sugar really did help the medicine go down.
Thursday, March 19, 2015
Humpty Dumpty sat on a wall, Humpty Dumpty had a great fall....
Ted always says,” life isn’t fair, fare is what you pay to ride the bus”
What gives you might ask yourself.
With my mom’s MS, her stability is not great. On Tuesday (St. Patricks’ Day) she fell down, got transported to the hospital, found out she broke her femer, and essential had hip surgery. Luck of the Irish huh? She’s Italian though so I think that may have had something to do with it.
Marshie is now residing in a hospital bed and will be going to rehab over the weekend. What rehab? Well I’m not sure yet because insurance has to figure this one out. Hopefully she’ll be at one close by, and good at getting her back home as quickly as possible.
Last March she was also in and out of the hospital/rehab, where she stayed for over 2 months. To say that I am angry and disappointed is an understatement. I keep thinking to myself how this completely sucks. How much setbacks can one family have, let alone one person? For the past year she worked so hard at getting her life to a point that she was happy with. Cooking, baking, cleaning, and playing with Bailey. She had just been practicing walking without her leg brace for my wedding in August. Now we are back to the beginning. It’s like playing “Chutes and Ladder’s” but never actually winning. It sucks to not win, and I am a poor loser.
When I got this new job, I got to start over. No one knew my dad passed away, my mom had MS for over 10 years; can’t work or drive, or the fact that I have MS. I felt like a new person coming in here. I became someone without a “past”, someone who got to start all over again.
Then Tuesday hit, I left work early and spent my favorite holiday in an ER.
Upon returning to work people asked me how everything was. I told them the situation and that my mom had MS. Most said that it was a “tough” disease and they knew other’s that had it. They didn’t know much about it, and still don’t. It has taken everything out of me to not break down crying, or run out screaming that I also have MS, something inside stops me every time. I don’t want people to ask me how I am every day, tell me not to get stressed out or feel bad for me in general. I want to continue to be as normal as humanly possible.
Sometimes, I want to not be me, but I am and I have to remember that this disease isn’t me. It is just a part of who I am.
My mom’s birthday is on Monday. So will begin another year of her in life, in a position that she doesn’t want to be in, at a place that isn’t her home. But much like this disease that many say is “tough”, she continues to inspire me and be the toughest of them all.
THANK YOU !